Things were going good when we got home, had a light supper, watched a little TV. Glad to be away from the hospital. Then about 8:00 the same problems surface. Severe wrenching, pain, and could not get comfortable in bed. Hot one minute and cold the next. Did our routine of hot and ice packs, massages, pain and nausea meds. She eventually got up and laid down on the recliner. When she eventually fell asleep I slept a bit but kept getting up to check on her. Finally just brought out an air mattress and laid down next to her. She was having problems at around 5:30 so more meds and she managed to get back to sleep.
I slept a bit more and remember thinking as I came out of the fog what reality was like and hoping for the best. Maybe she ate solids too soon? I took my meds, felt weak, filled up on nitroglycerin and stayed on oxygen for awhile. I knew I had to clean up, shave, and at least pretend all was well. If I looked weak it would give the wrong impression. Finally started to get more energy, washed a couple loads of clothes (which I’m sure will send her into a panic when learning), and went shopping for softer foods. I know I have to also take care of myself if I want to be there for her. Jello, yogurt, juices, fruit, soups, etc… I also put a call into her cancer team docs to let them know what was taking place. Haven’t heard back yet but I’m sure soon.
When I returned from the store she was up, showered, and showed me another large amount of hair that had fallen out. Wasn’t upset about, just looked very drained and exhausted. Tomorrow Lori and her are going to remove the rest of her hair and just be done with it. The main thing right now is not giving Twisty the upper hand. She is doing a lot better now though. Off all meds and even watching The Young and the Restless. Wouldn’t want to miss that I teased. This gal doesn’t cease to amaze me.
She didn’t even get upset at me doing the laundry. I didn’t mess with the girly stuff so was safe. She appreciated it. Then looked outside our door and seen boxes by it from the mail. Haven’t had time to open them with her but soon will.
No one promised life would be unicorns and butterflies but hopefully soon she will start feeling better longer than a couple hours. This time if the pain starts we are going straight to the ER and have another scan done. Maybe there is a problem with the new stent. Won’t mess around and just think it’s a chemo side effect.
She went back to bed now, food staying down, resting peacefully. I turned on the TV, watching CNN and watching press briefing, while reading how Trump is dismantling healthcare with executive orders. We are on Medicaid and a blow to that would be truly devastating for us. Will leave politics out of this, but it’s a bunch of BS with our President “tweeting” such bizarre and mindless things. Enough said, will hold my tongue, or one finger typing back on this one.
Just got a call from her cancer team, they want her to return to the ER because of last night. Something more serious could be taking place and pain meds could be masking it. Will keep everyone updated.
Doc just came in and had good news. No movement of stent, no pancreatis infection, things look good. They are going to try her on some clear diet, if it goes well we will be home. If it doesn’t then tomorrow. No trip to Petoskey or anything. Yah! What was ruled out was the best news. Said the organ has taken a lot of trauma and reacts with swelling and that causes the dominoes to fall. Sorry Mackinaw Bridge, no scenic view tonight.